I’m cold

I don’t mean in terms of my personality, although sometimes I am a bit frosty. I suffer from Raynaud’s syndrome.

It has been a long journey from the first symptoms to a sort-of diagnosis. The consultant has more ruled other things out than determined it unequivocally.

Raynaud’s is actually a fairly common condition (hello to any fellow sufferers!). You can read more about it on the NHS website. It affects the blood supply to the extremities; my blood vessels go into a sort of spasm and block the flow of blood. That spasm is, for me, almost permanent. My feet were often blue (they looked like they belonged to a zombie) and my fingers were completely white.

GlovesI spent about 6 months permanently cold, and I don’t mean a little bit chilly – I mean agonisingly, bitterly cold. I developed a vitamin D deficiency because I spent so little time outside unless I was completely wrapped up. I often need a hat, gloves and big coat just to make going outdoors bearable.

I have tried three different medications so far with varying levels of success. The first left me warm but with the uncomfortable sensation of strongly feeling my own heart beat and legs that looked like I had been boiled. The next took away the pins and needles and the stabbing pains in my hands, but left me cold, achy and with excruciating pains in my feet. The current medication seems to be having little effect at all – I’m having trouble moving my hands and I think I am experiencing life at about 10°C lower than most other people.

There is one more medication that the consultant thinks I could try. I will ask to give it a go at my next appointment in May. I’m currently sat in bed under a big blanket, feeling sorry for myself. Some of my future posts will likely be related to dealing with and experiences of Raynaud’s, but I will try not to make them glum!



This is my first post on https://ellorybrown.wordpress.com/.


I plan to write a little bit about whatever I fancy at least once a week. My posts will probably be about my thoughts and experiences, events I go to, books I read, and films and television programmes I watch.

Stories are an important part of my life and I hope one day I will send one of my own creation out into the world. I have started writing many stories, but I have only finished one. It’s fairly awful and no one will ever see it. I haven’t deleted it though; it is still sat on my hard drive, serving as a reminder that it is possible. I can write something that looks a bit like a novel. The next one will be better.

Loch Lomond

     I believe this to be Loch Lomond. It is stunning in real life but my own photography was poor.

Aside from being the writer of a terrible novel, I am a voracious food-eater, keen walker of hilly landscapes, exasperated cat-wrangler, reluctant driver and enthusiastic penny-pincher.

I really sold myself there. Job done I reckon.